Macular Society’s Newsletter

The Macular Society’s latest newsletter is out. See below for all the headlines. You can read the full newsletter here

“As a mother, it’s one of the hardest things to face”
Ten-year-old Freddie was diagnosed with Stargardt, a rare form of macular disease, last year after teachers initially voiced their concerns to his mum Stacy. Stacy shared their story as part of Macular Week.

Breakthrough AI technology helping our understanding of macular disease
A groundbreaking project harnessing the power of artificial intelligence (AI) has the potential to revolutionise both the diagnosis and treatment of macular disease, according to researcher professor Adam Dubis.

Your questions answered
Our first webinar in July will welcome an ophthalmologist and an optometrist who will be answering your questions on macular disease. From topics including treatment, nutrition and everything in between, you can look forward to hearing more from the experts.

All you need to know about macular research
What would you like to know about research into macular disease, or how research works more generally? Whether you’re interested in why clinical trials take so long, or how far research into macular disease has progressed over the last decade, you’ll discover the answers here!

The Macular Society’s research team, Geraldine Hoad and Sarah Clinton, will be taking your questions at our second webinar of the month on Thursday 27 July at the new time of 7pm. Send your questions in advance to

Improving eye care services: a shared vision
The national clinical director for eye care, Louisa Wickham, says she is determined to address the challenges faced by the sector and improve eye care services for everyone who needs them.

“It’s valuable to come together with people who understand what it is like”
People living with a rare macular condition called punctate inner choroidopathy (PIC) will now benefit from a new condition-specific support group. This is just one of the new online groups we have set up so you can share with other people who have had similar experiences to you.

New treatments go under the spotlight for our 2023 conference
The first-ever treatment for dry age-related macular degeneration (AMD) will be one of the exciting topics under the spotlight at this year’s Macular Disease Conference – Hope for the Future.

Singer Vince Hill auctioning off beloved Jaguar
Macular Society patron and singer Vince Hill has put one of his most beloved cars up for sale to Beat Macular Disease. Vince, who is best known for his recording of the show tune ‘Edelweiss’ in the 1960s, is parting ways with his 1996 Jaguar XJ6, in British racing green.

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