Macular Society – Latest Newsletter

The Macular Society produce an excellent monthly newsletter.

Here’s a taste of what’s in this month’s edition, which you can read here.

Welcome to your November e-newsletter. You’ve told us how important raising awareness of macular disease is to you, and we’re delighted to tell you how we’ve been doing just that both on television and at Westminster.

Actress and model Twiggy featured in a brand new television advert, reminding viewers to look after their eyes and told them about the Macular Society too. The advert is also showing on YouTube.

And thanks to you, we were able to continue to put macular disease on the map as we headed to Westminster for the annual ‘The Eyes Have It’ event. Almost 50 MPs came along to find out more about how to tackle the capacity crisis in eye care. Many of those who attended did so because you, their constituent, asked them to. We will continue to update you on the progress being made from these meetings, which simply would not be possible without you.

Thank you for all that you do to help Beat Macular Disease. “Everyone wants to be special, but medically special is the one kind of special no one wants to be” At first Jessica noticed she was not able to read the TV guide and was struggling reading text messages, but she put it down to being tired, as a busy working mum. The 51-year-old has shared her story, how she came to terms with her diagnosis and her hopes for the future.

New research investigates immune system’s role in AMD
New research, funded by our wonderful community, is looking into a specific part of the immune system, called the ‘complement system’, which, when damaged, can lead to age-related macular degeneration (AMD).

Statins and diabetes drugs could reduce risk of age-related macular degeneration
Drugs to control diabetes and lower cholesterol may reduce the risk of developing age-related macular degeneration (AMD), a new study suggests.

New partnership helps patients get involved in research
Clinical research organisation Ora Inc has partnered with the Macular Society to help more people take part in clinical trials and speed up new treatments for macular disease. According to the global company, just 3% of patients in the UK ever take part in a clinical trial, mostly due to lack of awareness and understanding of the research process.

Experts unite to find a cure for dry AMD
Global experts in macular disease will meet in the US this month to speed up the progress being made to find a cure for dry age-related macular degeneration (AMD). Our Director of Services Stephen Scowcroft will be among those speaking and will share insights from our members.

“We want people to carry on doing what they love”
Macular Society member Peter began drawing for fun 30 years ago. Despite the struggles of losing his sight, he has found a way of adapting in order to continue his passion. Find out how he’s managed to overcome the challenges with other visually impaired artists, through a new support group.

“A befriender can help in so many ways”
Volunteer befriender Christina knew the impact of a diagnosis of macular disease, both through her professional life and the experience of her family. But when she was diagnosed the news still came as a shock. She now helps others come to terms with their condition.

Seed sales raise vital funds to Beat Macular Disease
Over £35,000 has been raised for the Macular Society by the sale of high-quality seeds, which will help fund vital research and services for people with macular disease. Thank you to PanAmerican Seed for your amazing support.

Injections for dry AMD
The first ever treatments for dry AMD could be around the corner. Consultant ophthalmologist Christiana Dinah and professor David Crabb, from City, University of London, join our November webinar to explore how patients really feel about the possibility of undergoing regular eye injections.

Research into a rare condition causing sight loss in children
Professor Andrew Lotery from the University of Southampton will be joining us later this month to discuss a rare macular condition called X linked retinoschisis. The condition is one of a number of inherited retinal diseases Professor Lotery and his team are researching and he’ll be talking about the latest developments.

Why is 5 December important?
Because that is the last date our shop will be able to guarantee deliveries in time for Christmas! Our online shop stocks Christmas cards, wrapping paper and your essential stationary for 2023. All profits from our shop Help Beat Macular Disease.

Read the newsletter in full here