Member Video: living with Ehlers-Danlos syndrome

At our Open Meeting on 22 February 2022, one of our members, Alison Schofield, spoke about her life and, in particular, living with Ehlers-Danlos syndrome.

With Alison’s kind permission, we videoed her talk and you can view it in full below. If you would like to know more about Ehlers-Danlos Syndrome, please visit the website of Ehlers-Danlos Support UK

You might also want to find out more information on Asperger Syndrome and the website we’d recommend is

On a personal level, Alison is aiming to raise £3000 to purchase an appropriate basketball wheelchair. She wants to continue to be able to play the sports she loves, improving her pain and stamina which she lives with daily due to EDS.

Alison is determined to swim the distance from London Olympic Park E20 2ST to Stoke Mandeville HP21 8AL during the spring of 2022 at her local swimming pool in order to raise money!

Find out more and support Alison here