Macular Society Newsletter

January Update

Welcome to your January e-newsletter and Happy New Year!

While this month is often a quiet one following December’s festivities, there’s already lots going on in the world of eye health and macular disease that we’re excited to share with you.

Despite a very frenetic start to the year in Westminster, this week Parliamentarians have yet again been shining a light on macular disease and the need for better treatment and care for everyone affected. Last year you were instrumental in supporting these initial discussions and your continued support means that macular disease is starting to get the awareness we know it needs.

Thanks to you, we start 2022 full of hope for the year ahead.

A debate in Westminster this week has highlighted the need to improve eye services in the UK to stop people from needlessly losing their sight.

A new study could help to prevent sight loss by identifying those at risk of developing age-related macular degeneration (AMD) before visual symptoms develop.

Our monthly webinars are returning for 2022, with the first event looking into new research exploring how our immune response can lead to macular disease.

Whether you have wet or dry age-related macular degeneration (AMD), there are lots of reasons to be optimistic about options for future treatment.

A new study, funded by the Macular Society and gifts from our supporters, is looking at how gene changes influence the development of macular disease. The lead researcher will be speaking at the upcoming Sight Loss and Your Genome webinar – a series of events by Genomics England, in partnership with UK sight loss charities.

After being diagnosed with age-related macular degeneration (AMD) 16 years ago, Pauline Mason threw herself into volunteering, fundraising and research to help make a difference to others affected. And even after her sudden sad passing last year, Pauline has continued to inspire her family to raise vital funds in her memory.

Are you struggling with the long winter nights or would you just like some company? Our series of evening calls, launched in lockdown 2020, have returned for a second year to provide comfort, friendship and entertainment to help us through a cold winter, together.

Whether you’d like to know about her hopes for the future of macular research, how close she thinks we are to a cure, or more information about how the Society is continuing to support people with macular disease, we would love to hear from you. Send your questions to us at stories@macularsociety.org and we’ll share some of her answers over the coming months.

Advice and Information Service  0300 3030 111

Macular Society, PO Box 1870, Andover, Hampshire, SP10 9AD. Macular Society is the trading name of the Macular Disease Society. A charity registered in England and Wales 1001198, Scotland SC042015 and Isle of Man 1123. A company limited by guarantee, registered in England No. 2177039. Registered Office: Macular Society, Crown Chambers, South Street, Andover SP10 2BN.